Should we protect your proteins?

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About the research

Your privacy matters — especially when it comes to your personal data, like your DNA. Strict privacy laws, such as the GDPR, are designed to protect this sensitive information. However, the same protections don't always apply to protein data, which is often shared in public databases as part of scientific research. These databases are vital for advancing science and developing new treatments, but they also raise important questions about privacy.

In this video, bioinformatician Frédérique Vilenne (VITO -UHasselt), together with ethicists, explores how we can balance scientific progress with safeguarding your personal data — every step of the way.

Data
Frédérique Vilenne
UHasselt - VITO


Frédérique Vilenne is a PhD researcher at Hasselt University and the Flemish Institute for Technological Research. Since 2022, he has been working on ways to make protein research more useful in hospitals and healthcare. His work is part of a larger project that looks at the ethical questions around using large groups of people in scientific studies.

Specifically, Frédérique develops computer tools and statistical methods to improve how we study proteins using a technique called mass spectrometry. By fixing gaps in current research methods, his work brings us closer to personalized medicine — where treatments can be tailored to each individual.

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