What happens to your health data?

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About the research

Your health data can help detect heart disease 📱 ⌚️ 🩺

Every day in Belgium, we collect millions of pieces of health data: smartphones track our movements, sports watches monitor our sleep, and doctors measure our blood pressure. But often, this data remains fragmented and unused, even though it could be useful to you and others.

With 'We Are', a secure online platform, you can consciously connect and share your health data. Researcher Cato van Schyndel (VITO - KU Leuven) explains how it works and how researchers, together with citizens, ensure that everything is done safely and ethically,, while you get the final say on which data you want to share and with whom. 

In this way, researchers are trying to ensure that we can consciously use this data together, for example, to detect heart disease more quickly.

Data
Health
Cato van Schyndel
KU Leuven - VITO

Cato’s background in biomedical sciences sparked her interest in how we can support people’s health and prevent diseases. Along the way, she became fascinated by the potential of health data, and by how little people often know about what happens with their own data. In her PhD research at KU Leuven, in collaboration with VITO, she studies how citizens really want to be involved in decisions about their health data, and what forms of control, transparency, and participation feel meaningful to them.

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